What exactly is atypical autoimmune disorder?
Fred and ERICSAGOD
- Thread starter Bearded but no genius
- Start date
Marching said:
It makes all of your muscles ache like you have a serious case of the flu, or worse, and makes you exhausted, feverish, and confused, and makes simple tasks sometimes very hard to do.
It can be very difficult to diagnose, the only real sign is elevation in your Anti-Nuclear Antibodies in your blood, and wounds taking longer to heal than they should. How exactly one goes about getting it is a mystery, although it can be inherited (my mother also has it), but is not otherwise communicable.
There's no real treatment except zonking you out on anti-inflammatories and pain medications to varying degrees of success.
Couple this with serious nerve damage from a back injury (and the medications I take for that) and you have a mightily fecked up 27 year old.
jasonrh said:
Sounds rough.
Is it a constant state of aching muscles and confusion etc?
Marching said:
It never goes completely away, but there are plenty of days when I feel something approaching normal (like a mild flu type body ache), and can go out to dinner or shopping or something and then come home and rest.
Frequently, though, those days seem to coincide with bad back days, my proof their is no God, and my wife's proof that God is spiteful.
There are other times when I only drag myself out of bed to piss for 20 hours or so.
Its great fun, I can tell you!
jasonrh said:It never goes completely away, but there are plenty of days when I feel something approaching normal (like a mild flu type body ache), and can go out to dinner or shopping or something and then come home and rest.
Frequently, though, those days seem to coincide with bad back days, my proof their is no God, and my wife's proof that God is spiteful.
There are other times when I only drag myself out of bed to piss for 20 hours or so.
Its great fun, I can tell you!
You also have a drink problem if your pissing routine is anything to go by.
Seriously though, have you given up hope of re-entering the job market?
Nope, I can't drink. The meds do a mighty number on the liver, though.Marching said:You also have a drink problem if your pissing routine is anything to go by.
Seriously though, have you given up hope of re-entering the job market?
I never entered the job market. I was at school until a year ago. Missed a year of that in bed when I fecked up my back cleaning my apartment.
About 18 months or so ago I began to get worse and worse with the autoimmune. There was never any real question of me working. We kept waiting for it to let up, and this time it hasn't.
Hence, you're graced with me.*
*This is likely a sign to you that there is either no God or that there is a spiteful God. My apologies.
jasonrh said:Nope, I can't drink. The meds do a mighty number on the liver, though.
I never entered the job market. I was at school until a year ago. Missed a year of that in bed when I fecked up my back cleaning my apartment.
About 18 months or so ago I began to get worse and worse with the autoimmune. There was never any real question of me working. We kept waiting for it to let up, and this time it hasn't.
Hence, you're graced with me.*
*This is likely a sign to you that there is either no God or that there is a spiteful God. My apologies.
In school until you were 26? That's some education.
Shame for it to go to waste...there must be something useful you can put the education towards.
There is no god.
Marching said:
Hope springs eternal, but at the moment most jobs require healthy folks.
julissa said:
I agree, most do.
I'm a fully licensed attorney.Marching said:
But no firms want someone who 'might' be able to work 15-20 hours 'some' weeks.
Very part time private practice is out right now because malpractice insurance is dreadfully expensive for a one man 'firm', especially considering the fact I essentially can't do anything litigation related because there's no guarantee I would be healthy enough to show up in court on the required day.
We have a lot of family money, and she makes good money as well. So its not a problem for us mercifully.
Heylo.julissa said:
35 minutes.
jasonrh said:Heylo.
35 minutes.
Thank the deity you claim does not exist.
jasonrh said:
I understood that there wasn't the need there to work - I was thinking in more of a self-esteem way.
Life's far from all about money.
Why not put something into the local community out of the goodness of your heart and put your talents towards a charity of some sort.
I have a friend who's daughter has ME who went down that road and really felt the benefit.
I'll refrain from thanking any deities whatsoever, as is my perogative as an individual with free will.julissa said:
As time goes on, I've got to do something.Marching said:
But we're still experimenting with medicines and trying to stabilise me as much as possible.
Cheers for asking and taking the time to listen.
Why don't you try your hand at writing, or something.
Seems a stupid idea, but it can at least be creative, and may help pass some time.
For example, I have a self made comic about pillow boxes fighting a war against penguiny shaped green people, which I did whilst I was on crutches and stuck indoors. There's also a mad bloke shaped like a cloud. It's great
Seems a stupid idea, but it can at least be creative, and may help pass some time.
For example, I have a self made comic about pillow boxes fighting a war against penguiny shaped green people, which I did whilst I was on crutches and stuck indoors. There's also a mad bloke shaped like a cloud. It's great
I do read and spend money a lot, noodle.
Sadly I'm not a creative type. I'm one of the collector types.
Sadly I'm not a creative type. I'm one of the collector types.
It seems we are we discussing your health issues because some think you spend too much time posting on here or RR - it's entirely your decision what you do with your spare time or life. It seems to me after reading this thread that you are trying to justify being here, trying to explain your health problems or inactivity in the job market - which is all very well if it's done to educate people of your illness, which reading between the lines don't think is the case, except for a few posts where Marching is concerned...as a Moderator on this forum I thank you for spending time on this forum, more the merrier.
That's what Niall would expect from me - Jason, thank you for sharing your time with me and others, I for one thank you.
If I have mis-understood the thread please forgive me, It's my thoughts and not a dig directed at any other poster.
That's what Niall would expect from me - Jason, thank you for sharing your time with me and others, I for one thank you.
If I have mis-understood the thread please forgive me, It's my thoughts and not a dig directed at any other poster.
It sounds like a hangover
It sounds like Chronic Fatigue Syndrome. My mate has it, and he hasn't left his house in years, except for trips to the doctors.
He's got really good at Pro Evolution though....the swine.
He's got really good at Pro Evolution though....the swine.
Again, a hangover
Where I come from it's called being a lazy cnut!
Classy as always Weaste.
Ive been housebound the last 3 days since cracking my ankle out running. who said exercise is good for you?
Sounds bad Jas, must get bored shitless.
I took up writing scripts the last few days, im considering making one based on a murderer who stalks internet sites and bumps off every person he doesnt like. Im joking really. He just makes prank calls.
Sounds bad Jas, must get bored shitless.
I took up writing scripts the last few days, im considering making one based on a murderer who stalks internet sites and bumps off every person he doesnt like. Im joking really. He just makes prank calls.
What you need to do, is include a sub plot where pillow boxes wage a war on green penguin shaped peoplegolden_blunder said:
My ankles/shins ache every time I walk for more than 5 minutes these last few weeks. Awful burning pains to the point where I have to have a rest...
I'd book a doctors appointment, but I'm worried that he'll just call me on the fact that I'm an unfit cnut and say there's nothing wrong with me.
I'd book a doctors appointment, but I'm worried that he'll just call me on the fact that I'm an unfit cnut and say there's nothing wrong with me.
Noodle,noodlehair said:
2 questions
1>what the feck is a pillow box??
2>what the feck is happening inside your head??
French Henry said:
shin splits
ouch
I've been feeling of cold coming on recently.
That is all.
That is all.
I'm not sure I can answer either of thosegolden_blunder said:
golden_blunder said:
Yeah, that was my original self-diagnosis too.....But I thought you had to actually do some sort of exercise to get it though. And the 'bend your foot downwards and see if there's pain' technique didn't work on me - so it might now be.
I don't like going to the doctors for trivial things...
It can act like chronic fatigue at times, but unlike chronic fatigue, it does show signs in the blood.French Henry said:
Also, it causes wounds to struggle to heal at times. Yum.
French Henry said:
me too, im well hard. I bet ive been walking around for 3 days on a broken ankle, thats how hard i am.
need to be hard when youre a clumsy fecker though. I even managed to stab myself in the back with a garden table leg and draw blood (dont ask)
oh and btw you can get shin splints just from walking
try you weird imagination freaknoodlehair said:
A pillow box is called a pillow box because its top looks like a fancy cushion.
WeasteDevil said:
feckin' hell what a disgraceful post
You sound like David Brent.
heightmassive said:
Boo fecking hoo!
WeasteDevil said:
Perhaps more Gareth Keenan....I'm thinking about the scene when he wants a fire alarm test to see if they're genuinely disabled.
Bit naughty and you know it.
Promote Fred.
You know it makes sense.
You know it makes sense.
heightmassive said:
Possibly!